COPD (Chronic Obstructive Pulmonary Disease)
- An Introduction to COPD
- Audio Interviews and Stories about COPD
- Some of the experts you can hear in this section
- Useful contacts and links
- Real Stories
An Introduction to COPD
What is COPD?
COPD stands for Chronic Obstructive Pulmonary Disease. It’s an umbrella term for a number of lung conditions including chronic bronchitis and emphysema. COPD builds up over several years and causes damage to the airways in your lungs (bronchitis) and to the tiny air sacs where the oxygen gets into the blood (emphysema). The main symptoms are cough, phlegm and shortness of breath. Breathlessness can make it hard to do normal activities like going upstairs, getting dressed or walking to the shops and may lead to isolation and depression. The main cause is smoking. The chances of getting COPD increase the more you smoke and the longer you’ve been smoking. There is no cure for COPD and the treatment mainly involves relieving the symptoms.
The Facts
- COPD usually affects people who are over 40
- COPD affects more women than men
- Around 900,000 people in the UK have been diagnosed with COPD
- The British Lung Foundation estimates that 3.7 million people actually have COPD
- COPD is the second most common cause of emergency admission to hospital
- COPD causes 30,000 deaths a year in the UK
- Barking and Dagenham comes 3rd in a list of areas with the highest proportion of people at risk of hospital admission with COPD and 12th in a list of UK COPD “hotspots” (Dr. Foster Intelligence)
What You’ll Find Out Here
COPD can have a devastating effect on people’s lives. Extreme breathlessness can make it difficult to do even the simplest things. It can prevent people doing things they enjoy and in extreme cases confine people to their homes and even their beds. As a result COPD can cause anxiety and depression as well as shortness of breath. COPD is incurable but a lot can be done to relieve its symptoms. In these pages you’ll learn from national and local experts what to expect as the condition progresses. You’ll also hear real stories from people in Barking and Dagenham who have the disease. You can find out about the successful pulmonary rehabilitation programme in Barking and Dagenham and other services in the area. Doctors will explain what medications and other treatments are available and the importance of keeping active. You’ll be given one crucial piece of advice – quitting smoking is the best thing you can do to help your COPD.
Click on the chapters below to listen to the interviews
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Chapter 1 - What is COPD?
With Dr. Keith Prowse, Dr. David Halpin
COPD is the general name for a collection of lung diseases including chronic bronchitis and emphysema. You may know it better by these names. People with COPD have difficulty breathing because of long-term damage to their lungs.
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Chapter 2 - Bronchitis, Emphysema and Asthma
With Dr. Keith Prowse, Dr. David Halpin, Dr. Rob Fowler
How will you know whether you have asthma or COPD? What’s the difference between bronchitis and emphysema? Listen here for a simple guide to how each affects you.
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Chapter 3 - Early symptoms of COPD
With Dr. Sarah Jarvis, Dr. Keith Prowse, Dr. Rod Storring
It may start with just a bit of a cough. Perhaps you get a little more puffed walking up stairs. You may put it down to smoking, or just getting older. But it could be COPD. The earlier COPD is diagnosed, the earlier treatment can begin.
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Real Stories 3 - Sue’s Story
With Sue Matthews
Sue Matthews helps run the Barking and Dagenham Breathe Easy group. She’s 54 and was diagnosed with COPD in 2008. In this section she talks about the gradual progression of COPD, the embarrassment of using oxygen and her determination to keep active.
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Chapter 4 - Breathlessness
With Dr. Sarah Jarvis, Dr. David Halpin, Dr. Keith Prowse, Dr. Rod Storring
Shortness of breath is a common symptom of COPD. You may find it harder to do ordinary daily activities that you used to find easy like getting dressed or walking to the shops. Breathlessness can become very frightening and lead to isolation and depression.
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Chapter 5 - What does breathlessness feel like?
It can be very frightening not being able to breathe. In this section some people with COPD give an idea of what it’s like. You’ll also hear about a useful breathing technique and realise that breathlessness doesn’t need to stop you doing everything.
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Chapter 6 - What causes COPD?
With Dr. David Halpin, Dr. Keith Prowse, Anne Lenaghan
The main cause of COPD is smoking. The chances of developing the disease increase the more you smoke and the longer you’ve been smoking. If you have COPD it’s essential you quit smoking.
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Real Stories 4 - Wayne’s Story
With Wayne Crookshank
Wayne Crookshank is 49. He smoked since he was 16 and in 2005 had part of his lung removed. He’s has to quit his job as a lorry driver and doesn’t know if he’ll ever work again.
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Chapter 7 - Diagnosing COPD
With Dr. Keith Prowse, Dr. Sarah Jarvis, Dr. David Halpin, Tendai Zinyengere, Anne Lenaghan
If you get breathless when you exercise, or have had a cough for a long time, you may have COPD. Your doctor or practice nurse can do a simple series of tests to find out. The earlier you are diagnosed the better. Don’t leave it until the disease is already far advanced.
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Chapter 8 - What are the tests like
With Tendai Zinyengere
You may have a chest x-ray or CT scan as part of your diagnosis but the most common test is spirometry – combined with your medical history. Listen to respiratory nurse Tendai describe how she goes about testing for COPD with a spirometer.
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Chapter 9 - Quitting smoking
With Prof. Robert West, Dr. Keith Prowse, Dr. Rob Fowler, Anne Lenaghan
Between the ages of 35 and 45 everyone’s lung function begins to decline. If you smoke the decline is up to three times faster. If you quit smoking you can slow down the effects of COPD and live longer. Barking and Dagenham Smoking Cessation services can help.
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Chapter 10 - Smokers’ tales
Jayne Din, Sue Matthews and Wayne Crookshank all have COPD. They all used to smoke. This is what they think of smoking now.
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Chapter 11 - Treating COPD (medication)
With Dr. Rob Fowler, Dr. David Halpin, Anne Lenaghan
Because there’s no cure for COPD treatment is mainly to relieve symptoms. It’s likely to involve one or more inhalers (bronchodilators and/or steroid inhalers) but you may also need tablets and possibly oxygen. It’s important to understand your medication and take it correctly.
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Chapter 12 - Techniques for dealing with breathlessness
With Dr. Rob Fowler
Dr. Fowler describes a couple of techniques which may help when you get breathless.
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Chapter 13 - Pulmonary Rehabilitation in Barking and Dagenham
With Physiotherapist Anne Lenaghan
Pulmonary rehab is part exercise, part education. It’s an eight week programme which can greatly improve your quality of life. It’s run by Barking and Dagenham’s lead respiratory physiotherapist. Guest speakers address every aspect of living with COPD.
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Chapter 14 - Exercise and pulmonary rehabilitation
With Anne Lenaghan, Dr. Sarah Jarvis, Dr. Rob Fowler
In this section Anne Lenaghan explains the type of exercise you’ll find on the pulmonary rehab programme. If you’ve never been inside a gym before, Anne will make it easy for you! And your whole life could change for the better.
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Real Stories 2 - Jayne’s Story
With Jayne Din
Jayne Din helps run the Barking and Dagenham Breathe Easy group. She’s 50 and was diagnosed fifteen years ago. In this section she talks about how she came to terms with losing her job, the benefits of pulmonary rehabilitation and how to keep a positive outlook on life.
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Chapter 15 - Why being active will help you
With Dr. Rob Fowler, Anne Lenaghan, Dr. Keith Prowse
Keeping active can help strengthen your heart and lungs. It can also improve your breathing and help you go back to doing things you enjoy. In this section you’ll hear some advice about diet as well.
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Chapter 16 - Breathe Easy
With Dr. Rob Fowler, Jayne Din, Sue Matthews, Wayne Crookshank
The Breathe Easy network provides support and information for people with COPD. You may find it useful to meet other people with COPD and share tips and experiences. There’s a very active group in Barking and Dagenham. See the contacts page for details.
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Chapter 17 - Other services in Barking and Dagenham
With Dr. Rob Fowler, Tendai Zinyengere, Dr. Rod Storring
There are plans to develop an Expert Patients Programme in Barking and Dagenham. If you’re unable to visit the clinic, home visits will be arranged. There’s also a rapid response team which may be able to treat your exacerbations at home and keep you out of hospital.
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Chapter 18 - Depression
With Anne Lenaghan, Dr. Sarah Jarvis
Having COPD can cause anxiety and depression. Don’t be afraid to talk to your doctor about depression and get help if you need it.
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Real Stories 1 - COPD, anxiety and depression
With Sue Matthews, Jayne Din and Wayne Crookshank
With Sue Matthews, Jayne Din and Wayne Crookshank from the Barking and Dagenham Breathy Easy support group.
Some of the experts you can hear in this section
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Dr. Rob Fowler
Chest Physician at Queen’s Hospital; works in Barking and Dagenham with the Integrated Respiratory Service
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Dr. Rod Storring
Consultant community chest physician in Barking and Dagenham looking after patients with COPD and asthma; previously consultant at King George Hospital
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Dr. Keith Prowse
Chest physician, Stoke-on-Trent; vice president and founder member of the British Lung Foundation
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Dr. Sarah Jarvis
GP, Richford Gate Medical Practice, West London; media commentator
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Prof. Robert West
Professor of Health Psychology and Director of Tobacco Studies, University College London; head of research on smoking cessation at the Health Behaviour Research Centre, UCL
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Dr. David Halpin
Consultant Respiratory Physician and Senior Clinical lecturer, Royal Devon and Exeter Hospital; Chairman of National Institute for Clinical Excellence COPD Guideline Committee
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Anne Lenaghan
Lead respiratory physiotherapist, NHS Barking and Dagenham; set up and runs the pulmonary rehabilitation programme
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Tendai Zinyengere
Respiratory nurse specialist at Porter’s Avenue Health Centre
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Jayne Din
Diagnosed with COPD 15 years ago; on the committee of the Barking and Dagenham Breathe Easy group
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Sue Matthews
Diagnosed with COPD in 2008; runs the Barking and Dagenham Breathe Easy group
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Wayne Crookshank
Has COPD; on the committee of the Barking and Dagenham Breathe Easy group
Useful contacts and links
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- British Lung Foundation
- 73-75 Goswell Rd
- London, EC1V 7ER
- www.lunguk.org
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- British Lung Foundation Helpline
- Tel: 08458 50 50 20
- Open Monday to Friday
- 10am – 6pm
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- NHS Choices
- www.nhs.uk
- Open 7 days a week
- 7am – 11pm
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- Breathe Easy Barking and Dagenham
- Breathe Easy Barking and Dagenham
- Starting Point
- 16 Pickering Road
- Barking
- IG11 8PG
- Tel: 0203 288 2175
- Meets on the last Thursday of each month
- 1pm – 3pm at the Seabrook Community Centre
- Wood Lane, Dagenham, Essex RM10 7RP
- breatheeasybarkingdagenham.com
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- Patient UK
- www.patient.co.uk
Real Stories
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Chapter 1 – COPD, anxiety and depression
With Sue Matthews, Jayne Din and Wayne Crookshank from the Barking and Dagenham Breathy Easy support group.
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Chapter 2 – Jayne’s Story
Jayne Din helps run the Barking and Dagenham Breathe Easy group. She’s 50 and was diagnosed fifteen years ago. In this section she talks about how she came to terms with losing her job, the benefits of pulmonary rehabilitation and how to keep a positive outlook on life.
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Chapter 3 – Sue’s Story
Sue Matthews helps run the Barking and Dagenham Breathe Easy group. She’s 54 and was diagnosed with COPD in 2008. In this section she talks about the gradual progression of COPD, the embarrassment of using oxygen and her determination to keep active.
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Chapter 4 – Wayne’s Story
Wayne Crookshank is 49. He smoked since he was 16 and in 2005 had part of his lung removed. He’s has to quit his job as a lorry driver and doesn’t know if he’ll ever work again.









